What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
Knowledge of aHUS – a Mountain to Climb
When it comes to knowledge of rare diseases patients are frequently critical of the level of knowledge of their treating clinicians.…
A patients perspective of aHUS name change
For the past nine years Global Action has been at the forefront of featuring the aHUS name change journey. Currently proposals…
Patients from around the world discuss aHUS name change
After reading this article fund out how to have your say by clicking and ANSWERING THE CALL aHUS patients have been…
All is quiet on the aHUS naming front
For several years now the naming of our disease has been discussed and new names proposed but nothing official has yet…
Change of name for aHUS news
What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the…