What aHUS patients think about a name change
If the name aHUS is to be changed and it remains a big IF as it remains in a state of…
Who are the aHUS persons requiring specific treatment.
It is clear that amongst the hullabaloo about aHUS renaming it was not those aHUS persons with known complement mutations, or…
New aHUS name it is like squaring the circle
Hey what's new? I have found out something new , did you know that aHUS is not the official name for…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
Mindful or minding RBCs after aHUS
Those with a chronic disease, whether in remission or not, remain mindful or minding what clinical tests are telling them about…
More countries for Global aHUS Town
Since our last report on Global aHUS Town very little has changed in the number of countries who are now aHUS…
ERKNET and TMA patients in Europe
Very little is heard from ERKNet (European Rare Kidney Disease Network) these days. Global Action used to have articles about its…
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