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eculizumab

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Read more about the article Is there a PDA for aHUS treatment continuation?

Is there a PDA for aHUS treatment continuation?

  • Post author:Len Woodward
  • Post published:May 7, 2025
  • Post category:Featured
  • Post comments:0 Comments

A PDA or patient decision aid is becoming an important part of the increasing shared decision making by patients and doctors.…

Continue ReadingIs there a PDA for aHUS treatment continuation?
Read more about the article Real world data on aHUS treatment discontinuation

Real world data on aHUS treatment discontinuation

  • Post author:Len Woodward
  • Post published:April 7, 2025
  • Post category:News
  • Post comments:0 Comments

A few days ago an article appeared in The Lancet which claims to be the largest real world analysis of complement…

Continue ReadingReal world data on aHUS treatment discontinuation
Read more about the article A chat about the Ravu-Pregnancy Registry

A chat about the Ravu-Pregnancy Registry

  • Post author:Len Woodward
  • Post published:March 19, 2025
  • Post category:Featured
  • Post comments:0 Comments

Recently I wrote an article about a clinical study which is an Ravulizumab pregnancy registry in the USA. Then tried to…

Continue ReadingA chat about the Ravu-Pregnancy Registry
Read more about the article India:  Eculizumab Approved by CDSCO for aHUS & PNH 

India:  Eculizumab Approved by CDSCO for aHUS & PNH 

  • Post author:Linda Burke
  • Post published:January 17, 2025
  • Post category:Featured
  • Post comments:0 Comments

After years of waiting, eculizumab Soliris(R) has been approved by India’s Central Drugs Standard Control Organisation (CDSCO) as an approved drug…

Continue ReadingIndia:  Eculizumab Approved by CDSCO for aHUS & PNH 
Read more about the article FDA has a record about aHUS

FDA has a record about aHUS

  • Post author:Len Woodward
  • Post published:January 10, 2025
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…

Continue ReadingFDA has a record about aHUS
Read more about the article Discontinuation – no longer needing complement inhibition

Discontinuation – no longer needing complement inhibition

  • Post author:Len Woodward
  • Post published:January 8, 2025
  • Post category:Featured
  • Post comments:0 Comments

Complement inhibition treatment discontinuation is a topic that Global Action has led on in the aHUS patient advocacy world for several…

Continue ReadingDiscontinuation – no longer needing complement inhibition
Read more about the article Treatment Discontinuation- do doctors and patients think alike?

Treatment Discontinuation- do doctors and patients think alike?

  • Post author:Len Woodward
  • Post published:December 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

Recently a novel article about complement inhibitor treatment discontinuation was published. Novel because of the research method used to produce its…

Continue ReadingTreatment Discontinuation- do doctors and patients think alike?
Read more about the article Eculizumab biosimilars available in Europe and USA

Eculizumab biosimilars available in Europe and USA

  • Post author:Len Woodward
  • Post published:November 14, 2024
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

There are now licensed biosimilars to eculizumab available in Europe and also in the USA ( see previous article and further…

Continue ReadingEculizumab biosimilars available in Europe and USA
Read more about the article Choice of aHUS  treatments

Choice of aHUS treatments

  • Post author:Len Woodward
  • Post published:November 10, 2024
  • Post category:Featured
  • Post comments:0 Comments

In making a choice aHUS patients’ preferences among treatments like eculizumab (and its biosimulars) , ravulizumab, crovalimab, and iptacopan it largely…

Continue ReadingChoice of aHUS treatments
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