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eculizumab

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Read more about the article Discontinuation – no longer needing complement inhibition

Discontinuation – no longer needing complement inhibition

  • Post author:Len Woodward
  • Post published:January 8, 2025
  • Post category:Featured
  • Post comments:0 Comments

Complement inhibition treatment discontinuation is a topic that Global Action has led on in the aHUS patient advocacy world for several…

Continue ReadingDiscontinuation – no longer needing complement inhibition
Read more about the article Treatment Discontinuation- do doctors and patients think alike?

Treatment Discontinuation- do doctors and patients think alike?

  • Post author:Len Woodward
  • Post published:December 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

Recently a novel article about complement inhibitor treatment discontinuation was published. Novel because of the research method used to produce its…

Continue ReadingTreatment Discontinuation- do doctors and patients think alike?
Read more about the article Eculizumab biosimilars available in Europe and USA

Eculizumab biosimilars available in Europe and USA

  • Post author:Len Woodward
  • Post published:November 14, 2024
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

There are now licensed biosimilars to eculizumab available in Europe and also in the USA ( see previous article and further…

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Read more about the article Choice of aHUS  treatments

Choice of aHUS treatments

  • Post author:Len Woodward
  • Post published:November 10, 2024
  • Post category:Featured
  • Post comments:0 Comments

In making a choice aHUS patients’ preferences among treatments like eculizumab (and its biosimulars) , ravulizumab, crovalimab, and iptacopan it largely…

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Read more about the article Discontinuing complement inhibitor treatment

Discontinuing complement inhibitor treatment

  • Post author:Len Woodward
  • Post published:October 22, 2024
  • Post category:Featured
  • Post comments:0 Comments

It is now just over 3 months since a discontinuing treatment decision making model was proposed to help aHUS patients make…

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Read more about the article aHUS awareness day and aHUS alliance Global Action

aHUS awareness day and aHUS alliance Global Action

  • Post author:Len Woodward
  • Post published:August 21, 2024
  • Post category:Featured
  • Post comments:0 Comments

Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…

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Read more about the article AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Without any further comment here is the model mentioned in the previous article ( which if you have not already seen…

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Read more about the article TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a…

Continue ReadingTO STOP OR NOT TO STOP – THAT IS THE QUESTION?
Read more about the article Jackie’s aHUS Experience: Rescue by Safety Card

Jackie’s aHUS Experience: Rescue by Safety Card

  • Post author:Linda Burke
  • Post published:May 24, 2024
  • Post category:Featured
  • Post comments:0 Comments

A

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