An ill person happens to “walk” into a Hospital and is having an onset of aHUS…
For a person experiencing aHUS (atypical hemolytic uremic syndrome / C-TMA/cTMA) onset who arrives at a hospital, acute stabilization (often with…
Serious Infections- aHUS patients are their own early warning system
An article appeared last month about practical things that need to be done to limit the risk for complement inhibitor users,…
Meningitis outbreak and living with aHUS
A meningitis outbreak should be of particular concern to those living with aHUS. A recent outbreak in the UK was described…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…
C5 convertase blocked yet some how it is not-what aHUS is that?
It kind of makes you think how can someone, who has a complement inhibitor treatment that blocks their C5 from being…
Hope Emerges for aHUS Patients in India
Hope Emerges for India's aHUS Patients After Years of Struggle After years of waiting in the shadows of India's healthcare system,…
Decision making in aHUS Health Recovery
The annual aHUS Awareness Day video ( see HERE) had a theme of best decision making in the recovery from an…
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