Atypical HUS Research - What's New? The aHUS Alliance Global Action team has created a virtual 'library' of publications that are aHUS-specific and are categorized by topics such as diagnosis, treatment, genetics, thrombotic microangiopathy (TMA), complement, transplant, pregnancy, and more.
The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year's aHUS Day is 'United in Advocacy'. Details the 2021 global campaign to raising awareness of atypical HUS.
Article No 441 18 June 2021 What topics and questions are likely to frame conversations about treating patients who have…
Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.
Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for…
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
What's new in atypical HUS Research & Publications? aHUS Alliance Global Action - Keeping you updated with new aHUS research as of December 2020.