About aHUS: for Youth Leaders, Camps & Coaches

Activity-based programs are a great for children to explore interest areas, learn new skills, and enjoy interactions with other children. What should coaches, camp directors, and youth program leaders know when activities include a child diagnosed with a rare disease like atypical HUS (aHUS)?

Continue Reading About aHUS: for Youth Leaders, Camps & Coaches

Finding a New Normal after Diagnosis

One mother’s personal story about her young son’s diagnosis with atypical HUS. Connected to the broader themes of what happens after a rare disease diagnosis as working parents strive to navigate, childcare, emotional stress, and family impacts.

Continue Reading Finding a New Normal after Diagnosis

Atypical HUS 1.0

What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.

Continue Reading Atypical HUS 1.0

Atypical HUS: Symptoms can be Perplexing

    People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the difficulty in speaking with their healthcare professionals about symptoms…

Continue Reading Atypical HUS: Symptoms can be Perplexing