Article No 373 2 September 2020 The theme for aHUS awareness day this year is wellness and well-being. Two words which look similar but with different meanings. Together they sum…
Article No. 304 12 December 2019 The alliance received a copy of an aHUS story from Slovakia. There are are unlikely to be more than two people to onset with…
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals to realise what all they do unless they stop…
Activity-based programs are a great for children to explore interest areas, learn new skills, and enjoy interactions with other children. What should coaches, camp directors, and youth program leaders know when activities include a child diagnosed with a rare disease like atypical HUS (aHUS)?
One mother’s personal story about her young son’s diagnosis with atypical HUS. Connected to the broader themes of what happens after a rare disease diagnosis as working parents strive to navigate, childcare, emotional stress, and family impacts.
The side effects of treatment and residual ailments of an aHUS onset featured highly by aHUS families in the contribution to the aHUS Patients Research Agenda. The topic is covered…
What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.
People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the difficulty in speaking with their healthcare professionals about symptoms…