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aHUS is confusing

Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if you have been told by your doctor you have…

What’s New in aHUS Research? Jan 2023 Edition

Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to have our aHUS global action team direct our spotlight…

Recruiting to aHUS Trials is not easy

Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been called worse, so OK, what do you want? I…

Atypical HUS Research: NOV 2022 New Additions

There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the wide variations in the disease’s name and classification. It’s…

aHUS at ASN Kidney Week 2022

Early in November in the USA thoughts not just turn to elections but also to Kidney Week. The American Society of Nephrologists Kidney Week is the biggest event in the…

You don’t have aHUS any more

You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured. You will be a patient with the "DISEASE FORMERLY…

Maternal Fetal Medicine: Collaborative Partnerships in TMA Care

We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some may wonder why a physician whose specialty area is…

Improving outcomes for “aHUS” patients, I was there.

As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting me to attend a conference about Complement Renal Disease.…