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Later onset aHUS

We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life. Their chances used to be that did not survive…

Why aHUS for them not me?

Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they have had aHUS and I haven’t? Well it depends…

Global aHUS at the Baltimore Conference

Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will find out about the events and the people we…

What’s New in aHUS Research – April 2023

It’s exciting to report that in the first months of 2023 there’s been a raft of new publications which are important to those affected by aHUS, and especially key to…

Atypical HUS – Index of KEY RESOURCES

aHUS is confusing

Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if you have been told by your doctor you have…

What’s New in aHUS Research? Jan 2023 Edition

Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to have our aHUS global action team direct our spotlight…

Recruiting to aHUS Trials is not easy

Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been called worse, so OK, what do you want? I…