LONG aHUS
aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic. An enormous amount of publicity has been given to…
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LONG aHUS
How are you doing? (1)- Patient Reported Outcomes
Article No 326 5 March 2020 Medical research depends a lot on the collection of clinical data about patients from blood and other physical tests and measures to determine the …
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How are you doing? (1)- Patient Reported Outcomes
Atypical HUS – RESOURCES 2020 version
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
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Atypical HUS – RESOURCES 2020 version
Atypical HUS & School
Atypical HUS and School: Information about teaching & learning. Learners of any age may be affected by chronic illness or a rare disease like aHUS. What schools and employers should know about people living with atypical hemolytic uremic syndrome (aHUS)
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Atypical HUS & School
Atypical HUS 1.0
What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.
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Atypical HUS 1.0
Website for aHUS that connects informs and collaborates
This version of the aHUS alliance website has been running for nearly 2 years ( there was a temporary one which preceded it to host the 2016 aHUS Global Poll).…
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Website for aHUS that connects informs and collaborates
Atypical HUS: Symptoms can be Perplexing
People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the difficulty in speaking with their healthcare professionals about symptoms…
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Atypical HUS: Symptoms can be Perplexing
Pathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3
4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment The THIRD Article in our Four Part Series …
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Pathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3