There was one question about COVID vaccinations and aHUS in the RDD2022 Video, Global Action featured several articles about COVID vaccination including advice given by clinicians as well as the…
The twice delayed ISN Frontiers Symposium on Complement related renal diseases - MPGN/C3G and aHUS is still on course to be held in Bergamo, Italy on 23rd to 25th June…
It is known that certain rare genetic variants, mutations, or markers, in components of the Complement System make some people susceptible to aHUS. it is less known that there are…
Although aHUS has genetic causes, in the majority of cases it is found that the patient is the only one in the family with the genetic susceptibility for aHUS. That…
Questions about hormones and aHUS in the RDD2022 video. It is a feature of aHUS that it becomes more common in females after puberty and during pregnancy. Both puberty and…
Remission from aHUS is different from having been cured because there is still an uncertainty that aHUS can return. If that happens it is called a relapse. For a relapse…
What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.
Who, or what, are atypical HUS PROs: are these people, concepts, or initiatives? In medical terminology PRO stands for ‘Patient Reported Outcomes’ and refers to comments made directly and in…