Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab trial was published ( see copy here ). 4 more…
What’s new in atypical HUS Research & Publications? aHUS Alliance Global Action – Keeping you updated with new aHUS research as of December 2020.
Article No. 398 4 December 2020 In its previous article "Dip into ASH 2020" Global Action highlighted research results relating to "aHUS" and "TMA" which are to be presented at…
Article No. 397 28 November 2020 The second major conference at this time of year with research results which matter to aHUS patients is the American Society of Hematologists'…
Harnessing the power of Nephrology Social Media – the aHUS Alliance looks back at KidneyWeek 2020 and its ability to inform & engage patient groups as well as medical professionals. How might Patient Experiences become better integrated to improve outreach and understanding for all stakeholders and initiatives?
Article No 389 27 October 2020 A process is a series of steps. Diagnosis is a process. A medical diagnosis is the process by which a persons symptoms and signs…
World Thrombosis Day is held annually on 13 October to help raise awareness of causes, dangers, and risk factors for blood clot formation. Thrombosis is the formation of potentially deadly blood clots in an artery or vein. People with the rare disease atypical HUS can experience organ damage from small vessel blood clots & need to be alert to signs of thrombosis.
Article No 384 4 October 2020 On the 3 August 2020 , the aHUS alliance Global Action sent out a call to the aHUS community appealing for help from patients/carers…