World Thrombosis Day is held annually on 13 October to help raise awareness of causes, dangers, and risk factors for blood clot formation. Thrombosis is the formation of potentially deadly blood clots in an artery or vein. People with the rare disease atypical HUS can experience organ damage from small vessel blood clots & need to be alert to signs of thrombosis.
Article No 384 4 October 2020 On the 3 August 2020 , the aHUS alliance Global Action sent out a call to the aHUS community appealing for help from patients/carers…
Article No. 382 29 September 2020 In just over three weeks it will be Kidney Week 2020. Kidney Week is the American Society of Nephrologists' (ASN) annual conference. Not surprisingly…
Article No 381 25 September 2020 To the aHUS alliance Global action aHUS Awareness Day has traditionally begun in Tuvalu in the Pacific Ocean and ending in the Midway Islands…
Article No. 377 16 September 2020 Atypical HUS: Key Facts & Info Atypical Hemolytic Uremic Syndrome - an ultra Rare Disease 2019 - SEPT - 2020 What’s…
Article No. 376 10 September 2020 It is not unheard of for someone with atypical Haemolytic Uremic Syndrome (aHUS) to have had an initial diagnosis of Thrombotic Thrombocytopenia Purpura (TTP). …
Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a small number they may still not know what they…
Article No. 350 18 June 2020 aHUS Global Action‘s blog about “aHUS in Deutschland” revealed an active patient support group for aHUS and MPGN patients. ( See previous article here)…