We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some may wonder why a physician whose specialty area is…
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting me to attend a conference about Complement Renal Disease.…
When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by those with rare diseases permeate the thinking of those…
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new aHUS therapeutic treatments? As with most matters, COVID-19 priorities…
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in learning about a medical condition that affects us personally.…
We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and views of patients in a specific nation. Thanks to…
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held on Saturday, August 20th, 9:00am to 4:30pm EDT. It…
Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving Global Outcomes, https://kdigo.org/ ) in Barcelona , Spain. Complement…