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Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.
The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year’s aHUS Day is ‘United in Advocacy’. Details the 2021 global campaign to raising awareness of atypical HUS.
Article No. 377 16 September 2020 Atypical HUS: Key Facts & Info Atypical Hemolytic Uremic Syndrome - an ultra Rare Disease 2019 - SEPT - 2020 What’s…
Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September 2020, was created by the aHUS Alliance to share…
Welcome to the aHUS Alliance Global Action’s Information Centre! Containing a stock of information resources about atypical Haemolytic Uraemic Syndrome (aHUS) gathered from around the world, this ‘virtual library’…
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
aHUS Awareness Day & Rare Disease Day Sharing information is a key part of advocacy - Check out our aHUS Press Kit, Fact Sheets and other assets within our Index…