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LONG aHUS

aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic. An enormous amount of publicity has been given to…

Follow up on aHUS/COVID19 JAbs Follow Up

Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s experience. The author had the Oxford-AstraZeneca COVID 19 vaccine in…

Attaining aHUS wellness and well being

Article No 373 2 September 2020 The theme for aHUS awareness day this year is wellness and well-being. Two words which look similar but with different meanings. Together they sum…

An aHUS tale from Slovakia

Article No. 304 12 December 2019 The alliance received a copy of an aHUS story from Slovakia. There are are unlikely to be more than two people to onset with…

Dialysis Diaries: Long Term Complications

The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals to realise what all they do unless they stop…

About aHUS: for Youth Leaders, Camps & Coaches

Activity-based programs are a great for children to explore interest areas, learn new skills, and enjoy interactions with other children. What should coaches, camp directors, and youth program leaders know when activities include a child diagnosed with a rare disease like atypical HUS (aHUS)?

Finding a New Normal after Diagnosis

One mother’s personal story about her young son’s diagnosis with atypical HUS. Connected to the broader themes of what happens after a rare disease diagnosis as working parents strive to navigate, childcare, emotional stress, and family impacts.

Some side effect- Meningococcal infection!

The side effects of treatment and residual ailments of an aHUS onset featured highly by aHUS families in the contribution to the aHUS Patients Research Agenda. The topic is covered…