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Author: ahusalliance

This author has written 437 articles
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Read more about the article aHUS hope for the developing world

aHUS hope for the developing world

  • Post author:ahusalliance
  • Post published:April 18, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Just over two years ago the alliance reported on an event in India where key aHUS clinicians met to discuss and…

Continue ReadingaHUS hope for the developing world
Read more about the article aHUS Alliance Annual Report

aHUS Alliance Annual Report

  • Post author:ahusalliance
  • Post published:April 16, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

The aHUS alliance global action is an incorporated charitable organisation registered with the Charities Commission in the UK. It has to…

Continue ReadingaHUS Alliance Annual Report
Read more about the article RAVULIZUMAB FOR aHUS

RAVULIZUMAB FOR aHUS

  • Post author:ahusalliance
  • Post published:April 7, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Ravulizumab has not featured in an aHUS alliance news item heading before. Ravulizumab has been watched by the alliance from its…

Continue ReadingRAVULIZUMAB FOR aHUS
Read more about the article Family Rhythms & aHUS: Interview with Cameron James

Family Rhythms & aHUS: Interview with Cameron James

  • Post author:ahusalliance
  • Post published:April 2, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Nashville singer & songwriter Cameron James talks with the aHUS Alliance about finding a new rhythm for her life after her daughter and husband both were diagnosed with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS).

Continue ReadingFamily Rhythms & aHUS: Interview with Cameron James
Read more about the article An aHUS Trigger- S. Pneumoniae

An aHUS Trigger- S. Pneumoniae

  • Post author:ahusalliance
  • Post published:March 25, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Most of the aHUS community are aware that aHUS is the result of predisposing genetic factors ,some known some not yet…

Continue ReadingAn aHUS Trigger- S. Pneumoniae
Read more about the article An aHUS research agenda case study

An aHUS research agenda case study

  • Post author:ahusalliance
  • Post published:March 18, 2019
  • Post category:Uncategorized
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Last summer an aHUS awareness article appeared in the magazine of the charity Kidney Research UK. ( see article here). Ostensibly…

Continue ReadingAn aHUS research agenda case study
Read more about the article The epilogue

The epilogue

  • Post author:ahusalliance
  • Post published:March 13, 2019
  • Post category:Uncategorized
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I set out in this series of blogs to not only tell the tale of a Reluctant Advocate , but also…

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Read more about the article RIP aHUSUK 2011-2016

RIP aHUSUK 2011-2016

  • Post author:ahusalliance
  • Post published:March 10, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

The reluctant advocate story nears its end aHUSUK had been created to support existing  aHUS patients  and those in the future…

Continue ReadingRIP aHUSUK 2011-2016
Read more about the article aHUS alliance collaborates -the website starts

aHUS alliance collaborates -the website starts

  • Post author:ahusalliance
  • Post published:March 10, 2019
  • Post category:Uncategorized
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More from the Reluctant Advocate. International collaboration was beginning to pick up considerably after the  2015 London meeting of affiliates. At…

Continue ReadingaHUS alliance collaborates -the website starts
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