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Author: ahusalliance

This author has written 437 articles
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Read more about the article 100 days to Rare Disease Day 2018

100 days to Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:November 20, 2017
  • Post category:Featured
  • Post comments:0 Comments

aHUS is rarer than rare In patient advocacy for rare diseases like aHUS there  seems to be a  background  cycle to…

Continue Reading100 days to Rare Disease Day 2018
Read more about the article All for one , one for all

All for one , one for all

  • Post author:ahusalliance
  • Post published:November 13, 2017
  • Post category:Featured
  • Post comments:0 Comments

aHUS is a savage and cruel illness that kills and maims people. This is something that those who have experienced it,…

Continue ReadingAll for one , one for all
Read more about the article ASN studies address aHUS Research Agenda

ASN studies address aHUS Research Agenda

  • Post author:ahusalliance
  • Post published:November 4, 2017
  • Post category:Featured
  • Post comments:0 Comments

Once again, the American Society of Nephrology’s (ASN) Kidney Week adds considerably to the knowledge of kidney disease in all its…

Continue ReadingASN studies address aHUS Research Agenda
Read more about the article Conference News & Info – Nov & Dec 2017

Conference News & Info – Nov & Dec 2017

  • Post author:ahusalliance
  • Post published:November 2, 2017
  • Post category:Featured
  • Post comments:0 Comments

    What news might be of interest to aHUS stakeholders these last 2 months of 2017?  Advancements in research and…

Continue ReadingConference News & Info – Nov & Dec 2017
Read more about the article aHUS Trials Watch 3

aHUS Trials Watch 3

  • Post author:ahusalliance
  • Post published:November 2, 2017
  • Post category:Featured
  • Post comments:0 Comments

In the aHUS Trials Watch 2 blog ( see here) news about a trial of a new complement inhibitor Cemdisiran using…

Continue ReadingaHUS Trials Watch 3
Read more about the article TMA 65 YEARS OLD TODAY

TMA 65 YEARS OLD TODAY

  • Post author:ahusalliance
  • Post published:October 25, 2017
  • Post category:Featured
  • Post comments:0 Comments

It was 65 years ago to day that Prof Symmers taught the world to say TMA. Prof Symmers, or Professor William…

Continue ReadingTMA 65 YEARS OLD TODAY
Read more about the article Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

  • Post author:ahusalliance
  • Post published:October 18, 2017
  • Post category:Featured
  • Post comments:0 Comments

International Nephrology Conference in BUCHAREST, Romania       17 & 18 Nov 2017     In the 1st conference of this type…

Continue ReadingBucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
Read more about the article aHUS “How To” – Find Atypical HUS Research

aHUS “How To” – Find Atypical HUS Research

  • Post author:ahusalliance
  • Post published:October 14, 2017
  • Post category:Featured
  • Post comments:0 Comments

  It can be a struggle to find information about medical conditions if you’ve been diagnosed with a rare disease, and…

Continue ReadingaHUS “How To” – Find Atypical HUS Research
Read more about the article World Thrombosis Day 2017

World Thrombosis Day 2017

  • Post author:ahusalliance
  • Post published:October 13, 2017
  • Post category:Featured
  • Post comments:0 Comments

Today is World Thrombosis Day. aHUS is the result of thrombosis in the small blood vessels – thrombotic microangiopathy, or TMA.…

Continue ReadingWorld Thrombosis Day 2017
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