Really, isn’t everyone aware of aHUS by now?
Look at any charity/ not for profit organisation related to health and the term “awareness” will be there in what they…
An aHUS Patient Entrepreneur ?
After reading an inspirational article* about Kamal Shah , which featured on the alliance’s social media recently, I was reminded about…
aHUS Registry Report: (aHUS) Registry
The alliance relationship with the atypical Hemolytic-Uremic Syndrome( aHUS) Registry (NCT01522183) is now well into its fifth year. This observational non…
Eculizumab Safety
Following on from its recent article about the safety of eculizumab ( see here ) the alliance has looked at two…
“Away from home” Eculizumab infusions
Within the aHUS Patients' Research Agenda is a topic about how aHUS affects work and school. A big question with so…
aHUS Awareness Day 2019 -Video
2019 aHUS Awareness Day - Atypical HUS families around the world are invited to participate in this aHUS Alliance outreach & advocacy project for 24 September. Slideshow project details for patients and caregivers affected by the rare disease aHUS.
Global Patient Advocacy-aHUS ROW
When the six European national aHUS organisations gathered in February 2013 for the first meeting of what was to become the…
aHUS Registry Report: ERKNet
The aHUS alliance has a long association with the Global aHUS Registry and has a place on its Scientific Advisory Board…
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…
- Go to the previous page
- 1
- …
- 26
- 27
- 28
- 29
- 30
- 31
- 32
- …
- 52
- Go to the next page