Really, isn’t everyone aware of aHUS by now?
Look at any charity/ not for profit organisation related to health and the term “awareness” will be there in what they…
Look at any charity/ not for profit organisation related to health and the term “awareness” will be there in what they…
After reading an inspirational article* about Kamal Shah , which featured on the alliance’s social media recently, I was reminded about…
The alliance relationship with the atypical Hemolytic-Uremic Syndrome( aHUS) Registry (NCT01522183) is now well into its fifth year. This observational non…
Following on from its recent article about the safety of eculizumab ( see here ) the alliance has looked at two…
Within the aHUS Patients' Research Agenda is a topic about how aHUS affects work and school. A big question with so…
2019 aHUS Awareness Day - Atypical HUS families around the world are invited to participate in this aHUS Alliance outreach & advocacy project for 24 September. Slideshow project details for patients and caregivers affected by the rare disease aHUS.
When the six European national aHUS organisations gathered in February 2013 for the first meeting of what was to become the…
The aHUS alliance has a long association with the Global aHUS Registry and has a place on its Scientific Advisory Board…
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…