aHUS who cares?
Another aHUS Awareness Day passes with an increase in participation by the aHUS community. At the time of writing the aHUS…
aHUS Awareness Day 2018 – The Video
Once again, with the help of aHUS Patients and their families, the aHUS alliance has produced a video to spread the…
Atypical HUS Fact Sheets – Sept 2018 Editions
Atypical HUS Fact Sheets (released Sept 2018) provide aHUS -specific research and info about the rare disease atypical Hemolytic Uremic Syndrome or aHUS. Available in 2 formats: an 'In Brief' print friendly pdf, and a full length version (17 page) with links to current atypical HUS research (with citations) and key topics of interest to physicians, aHUS patients, and their families.
aHUS Registry Update
In an update about the aHUS Registry earlier this year the alliance reported that Alexion had cut back its investment in…
Now where is my tutu?
(* Part 1 and Part 2 click here) Now where is my tutu? With the family moto “Non Offeres” ( “Never…
Where the heck did that come from?
Len Woodward was a founding Trustee of aHUSUK and a founding affiliate of the aHUS Alliance. He is also a Director…
South African Pediatric Nephrology: Global Panel Proposed for aHUS Drug Access
Dr Errol Gottlich and Professor Mignon McCulloch Resilience, fortitude and determination. These characteristics describe the South African doctor treating patients within a complex and changing…
A change in gear for a Reluctant Advocate
In this series of blogs Len Woodward explains and describes how he became an aHUS advocate and where the journey has…
aHUS Expert Centres never heard of them.
Everything that the aHUS alliance does and writes about relates to the "Rare Disease 6". The Rare Disease 6 are the…
- Go to the previous page
- 1
- …
- 31
- 32
- 33
- 34
- 35
- 36
- 37
- …
- 51
- Go to the next page