aHUS and the Red Balloon
It is just 25 days to aHUS Awareness Day 2017 and patients and patients' organsations around the world will be making…
#TMABoston Live
Post-Event Update:Presentations were videotaped, and appear on ourAtypical HUS Clinical Channel as the key asset of 2017 aHUS Awareness Day (24…
Patients as Partners
Patients are at the heart of healthcare. Patients are the recipients of medical care, and the participants in research and clinical…
Complement-mediated TMA awareness- did you know it was aHUS?
Earlier this year the website featured an article ( click here )about the nomenclature used to described aHUS. Clinical articles now…
AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…
Genetic testing for all? :Discuss
* To have genetic tests for all aHUS patients and families featured in the Rare Disease Day video ( see here).…
aHUS patients and the feeling of fatigue
There were several questions in the Rare Disease Day video about how aHUS patients feel after recovery from aHUS ( click…
The B of the aHUS Bang ends the Rare Disease Day Video
Rares of Romania asked the question " How can I understand in simple words what is happening in my body during this…
Complement over and under Complementing
One of the simplest and clearest overview images to illustrate the Complement system is provided by an organisation called Euro Diagnostica…
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