Getting better aHUS treatment in South Korea- the battle has begun
Although only 26 people have been identified in South Korea as being genetically predisposed to aHUS ( given its population the…
aHUS RESEARCHERS AND PATIENTS : GOOD WILL COME TOGETHER
Patient engagement in research is a developing issue. For it to be successful there needs to be a mutual appreciation of…
Ring out the aHUS Bell for New Year 2017
During the first aHUS Awareness Day activities in 2015, Professor Bernard S Kaplan of The Children's Hospital of Philadelphia wrote a…
aHUS Diagnosis & Treatment – KDIGO Controversy Conference
The KDIGO Controversies Conference on Complement-Mediated Kidney Disease was held November 19-21 2015 in Barcelona Spain. KDIGO’s mission is to…
Where we are up to on aHUS diagnosis and treatment
As 2016 comes to a close, the output from the 2015 KDIGO Controversy Conference about aHUS and C3G ( MPGN &…
There is more to aHUS than kidney disease
An onset of aHUS although predominantly associated with kidney failure, as the "U" for Uraemic relates, the Haemolytic activity also causes…
aHUS Voice from India supports UN NGO for Rare Disease Action
The United Nations has created a Non Government Organisation Committee for Rare Disease and held its inaugural meeting in November which…
What sort of complotype am I?
aHUS alliance was recently represented by its UK affiliate at a major conference in the UK about Complement. At the Complement…
PUBLICATION REVEALS FIRST aHUS PATIENTS RESEARCH AGENDA
An article entitled "An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry" has appeared in the Orphanet Journal…