New patient organisation in Japan
The latest aHUS patient organisation to affiliate to the alliance is aHUS Kids Japan. They introduce themselves in their own words…
aHUS Therapeutic Drug Pipeline – More ‘Ones to Watch’
NEW Information & Updates Available Here's the Latest: Atypical HUS Drug Pipeline – 2017 Update from the aHUS Alliance …
aHUS Awareness Day announced- Rising above aHUS goes public
The aHUS alliance has sent out a press release to let it be known that aHUS Awareness Day is on 24…
Someone needs to find a way out.
The 2016 Global aHUS Survey has provided a lot of insights into the global aHUS community. A further paper has recently…
aHUS Awareness Day- 24 Sept Campaign Outreach
Images for world aHUS Awareness Day, in multiple languages. aHUS Awareness Day was created in 2015 by the aHUS Alliance and recognized annually on 24 September to rare awareness about this very rare disease.
aHUS Awareness Day 2016 Global Visual Arts Project
The global aHUS Alliance, an affiliation of aHUS patient organizations from around the world, is encouraging all individuals, groups, and organizations to…
Graphs & Insights – Results from the 2016 aHUS Global Poll
The aHUS Alliance, an umbrella group of 15 nations with aHUS patient groups, launched a worldwide poll of aHUS patients and…
Trials relevant for aHUS patients around the world
One of the best ways to keep up to date with clinical trials relating to complement inhibitors and aHUS is to…
EURORDIS SEEKS COLLABORATION IN EUROPE ON PRICE OF DRUGS
Earlier this week EURORDIS issued a press release calling on Europe's health payers and suppliers to agree europe-wide prices for orphan…