Welcome to the Global aHUS Community Advisory Board.

The aHUS CAB is an independent, autonomous and international board of trained patients and caregivers  from 9 different countries across the world. 

The purpose of the aHUS  CAB is to provide a collective expertise to advise research and development, clinical trials and access to effective treatments for aHUS worldwide. This expertise will be available to Pharma and aHUS research networks. It will be patient centric and focus on what matters to the aHUS community.

Reports on the activities of the aHUS CAB will appear here:

16-18 November 2022- Inaugural meetings with Pharma

31 October 2022 – CAB Members

16 June 2022   –  CAB Launch:   Announcement – aHUS has a global Community Advisory Board