Welcome to the Global aHUS Community Advisory Board.

The aHUS CAB is an independent, autonomous and international board of trained patients and caregivers  from 9 different countries across the world. 

The purpose of the aHUS  CAB is to provide a collective expertise to advise research and development, clinical trials and access to effective treatments for aHUS worldwide. This expertise will be available to Pharma and aHUS research networks. It will be patient centric and focus on what matters to the aHUS community.

We welcome new participants, and those wishing to join this global advisory board may apply anytime, for details & the membership application form HERE .

Reports on the activities of the aHUS CAB will appear here:

28 Feb 2023 Report on Inaugural mtg in Barcelona (3 pharmaceutical companies) & new Members for the aHUS CAB

7 February 2023 A call for interest in joining the aHUS CAB

16-18 November 2022 Inaugural meetings with Pharma (Barcelona)

31 October 2022 -CAB Members

16 June 2022   –  CAB Launch:   Announcement – aHUS has a global Community Advisory Board