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Skin & Atypical HUS: Thrombotic Microangiopathy in aHUS

Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.

Rare Disease Day Video 2017 Reprise

The Rare Disease Day video provided an opportunity for aHUS patients around the world to voice what aHUS research was needed , and, in this unique way, brought an extensive…

aHUS Patient Care – the Need for Multidisciplinary Collaboration

Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit referral to a specialist. Presenting with a wide range…

Research & Education: Keys to aHUS Answers

Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical for diagnosis and for management of patient care. It’s…

Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA

Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the rare disease atypical hemolytic uremic syndrome, also known as…

aHUS Rare Disease Day Video 2

Like the "Rocky" films, the alliance Rare Disease Day video has a follow up version as more people from more countries have asked to be included since the video was…

Vision Issues & aHUS

It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical conditions that affect very small numbers of people, like…

aHUS RESEARCHERS AND PATIENTS : GOOD WILL COME TOGETHER

Patient engagement in research is a developing issue. For it to be successful there needs to be a mutual appreciation of the value that can be added by including patients…