Today is World Thrombosis Day. aHUS is the result of thrombosis in the small blood vessels – thrombotic microangiopathy, or TMA. To mark World Thrombosis Day, ThrombosisUK, a charity for…
So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it was something that gives some people aHUS. There is…
Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other eminent clinicians from the Boston hospitals held a symposium…
Post-Event Update:Presentations were videotaped, and appear on ourAtypical HUS Clinical Channel as the key asset of 2017 aHUS Awareness Day (24 Sept).Our sincere thanks to all participants & attendees at…
Earlier this year the website featured an article ( click here )about the nomenclature used to described aHUS. Clinical articles now feature many terms to describe differences in what was…
Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel . (These were the key assets for aHUS Awareness Day:…
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who gave the name "Complement" to the part of the…
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than it used to be , getting a diagnosis is…