Drug Discovery and Market Factors within the Atypical HUS Arena E: info@aHUSallianceAction.org The aHUS Alliance is an international group of people and organizations interested in the advancement of research…
Drug Discovery and Market Factors within the Atypical HUS Arena E: info@aHUSallianceAction.org Atypical HUS - Global Rare Disease Advocacy The aHUS Alliance is an…
People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the difficulty in speaking with their healthcare professionals about symptoms…
An anniversary passed just over a week or so on Rare Disease Day, with very little awareness in the aHUS /Renal community. It is little known by aHUS patients, but…
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Although…
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there are over 7000 rare diseases, rare patient populations affected…
The FIRST Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there are over 7000…
Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit referral to a specialist. Presenting with a wide range…