The aHUS Alliance has compiled a robust selection of published clinical research articles about aHUS and topics directly related to aHUS issues. Scrolling lists are offered by the topic or main issue covered by each publication such as aHUS critical care, diagnosis, transplants, genetics, pregnancy, or other areas.

Within each scrolling list, entries include the publication’s title and lead author along with a link to bring the viewer to that full text article (if free access) or abstract.  National aHUS patient groups around the world developed the aHUS Global Patients’ Research Agenda, which launched Rare Disease Day 2019 and lists 15 central research priorities. Many entries on each scrolling list address questions identified by  important to aHUS families, and are marked by its corresponding item on the aHUS Global Patients’ Research Agenda.

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 aHUS Global Patients’ Research Agenda

(Learn more at https://bit.ly/aHUSpatientResearchAgenda)

 

NEW RESEARCH What’s new in aHUS research, last update: 24 OCTOBER 2021. (Each new publication has also been added to the appropriate Category/ Topic listing.) 

Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

CRITICAL CARE Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

DIAGNOSIS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

TREATMENT Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

DISCONTINUING TREATMENT/RELAPSE Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

THROMBOTIC MICROANGIOPATHY (TMA) Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

EXTRA RENAL:  Effects on the Body Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

PREGNANCY Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

TRANSPLANTS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

GENETICS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

COMPLEMENT Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

SECONDARY aHUS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

TRIGGERS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

RESEARCH IN SPECIFIC NATIONS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

CASE STUDIES Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

PATIENT REGISTRY: Publications Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

DRUG DISCOVERY/RESEARCH Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

SUMMARY ARTICLES/LITERATURE REVIEWS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

CONSENSUS DOCUMENTS/GUIDELINES Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda

 

VARIED TOPICS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda