The aHUS Alliance has compiled a robust selection of published clinical research articles about aHUS and topics directly related to aHUS issues. Scrolling lists are offered by the topic or main issue covered by each publication such as aHUS critical care, diagnosis, transplants, genetics, pregnancy, or other areas.
Within each scrolling list, entries include the publication’s title and lead author along with a link to bring the viewer to that full text article (if free access) or abstract. National aHUS patient groups around the world developed the aHUS Global Patients’ Research Agenda, which launched Rare Disease Day 2019 and lists 15 central research priorities. Many entries on each scrolling list address questions identified by important to aHUS families, and are marked by its corresponding item on the aHUS Global Patients’ Research Agenda.
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aHUS Global Patients’ Research Agenda
(Learn more at https://bit.ly/aHUSpatientResearchAgenda)
NEW RESEARCH What’s new in aHUS research, last update: 30 JANUARY 2023. (Each new publication has also been added to the appropriate Category/ Topic listing.)
Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
CRITICAL CARE Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
DIAGNOSIS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
TREATMENT Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
DISCONTINUING TREATMENT/RELAPSE Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
THROMBOTIC MICROANGIOPATHY (TMA) Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
EXTRA RENAL: Effects on the Body Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
PREGNANCY Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
TRANSPLANTS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
GENETICS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
COMPLEMENT Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
SECONDARY aHUS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
TRIGGERS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
RESEARCH IN SPECIFIC NATIONS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
CASE STUDIES Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
PATIENT REGISTRIES: Publications Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
DRUG DISCOVERY/RESEARCH Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
SUMMARY ARTICLES/LITERATURE REVIEWS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
CONSENSUS DOCUMENTS/GUIDELINES Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda
VARIED TOPICS Learn about the aHUS Global Patients’ Research Agenda: bit.ly/aHUSpatientResearchAgenda