The aHUS Alliance has compiled a robust selection of published clinical research articles about aHUS and topics directly related to aHUS issues. Scrolling lists are offered by the topic or main issue covered by each publication such as aHUS critical care, diagnosis, transplants, genetics, pregnancy, or other areas.
Within each scrolling list, entries include the publication’s title and lead author along with a link to bring the viewer to that full text article (if free access) or abstract. National aHUS patient groups around the world developed the aHUS Global Patients’ Research Agenda, which launched Rare Disease Day 2019 and lists 15 central research priorities. Many entries on each scrolling list address questions identified by important to aHUS families, and are marked by its corresponding item on the aHUS Global Patients’ Research Agenda.
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(Learn more at http://bit.ly/aHUSpatientResearchAgenda)