How rare is ‘aHUS Rare’? If you or a loved one has been diagnosed with atypical HUS, it’s likely the medical team also stated “It’s a very rare disease”. But…
The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might help to greater clarity and understanding to this topic.…
Hi I don't have the aHUS gene. Hi That is good, but there is no aHUS gene so you could not have it anyway. What do you mean there is…
Hope Emerges for India's aHUS Patients After Years of Struggle After years of waiting in the shadows of India's healthcare system, patients with atypical hemolytic uremic syndrome (aHUS) are finally…
Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause of their aHUS - they are idiopathic? They just…
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) . TM is something which is ubiquitously spread on the…
So aHUS is an autoimmune disease? Well actually not but depending on the definition of aHUS there can be an autoimmune like element. Why so equivocal? Because autoimmunity needs to…
2025 aHUS Awareness Day Project - Watch it at this Link https://bit.ly/2025aHUS24Sept aHUS AWARENESS DAY 24 September – an annual day to highlight the issues, challenges, and remarkable individuals within…