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What about aHUS?

Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a big deal really. Just over four years ago a…

Transcript: aHUS & COVID-19 Webinar

Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…

COVID-19: Updates for 17 Apr 2020

Article No. 339 17 April 2020 17 April 2020 - It’s a difficult task to keep track of COVID-19 news & research, especially since it’s a continually evolving situation. …

aHUS & COVID-19: a Resource Page

As COVID-19 research, vaccines & availability, and national/regional response vary greatly by year and location, aHUS Alliance Global Action reminds you to check with your medical team for advice and…

Atypical HUS: What are you Waiting for?

Learning that you or a loved one have been diagnosed with a rare disease like atypical HUS is devastating. Imagine the fear and uncertainty that follows diagnosis when it becomes…

They “get it ” when they can get it.

Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a rare disease. To be classified as a more common…

Atypical HUS – RESOURCES 2020 version

Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…

Atypical HUS: Video & Audio

AUDIO Podcasts by Dr Brad Lewis of Machaon Diagnostics aHUS and Pregnancy aHUS/TMA in Pregnancy, with Richard Burwick, MD, MPH – Assistant Professor, Department of Obstetrics and Gynecology, Division of…