Perspectives in Atypical HUS

The aHUS Alliance presents issues and information from varied perspectives within the atypical HUS arena. Amplifying the patient voice in over 30 countries, we present this series of original content on topics related to the rare disease atypical HUS with articles focused on key interests of patients, caregivers, physicians, researchers and other stakeholders,

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An aHUS research agenda case study

Last summer an aHUS awareness article appeared in the magazine of the charity Kidney Research UK. ( see article here). Ostensibly it is about aHUS and pregnancy which is one…

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Contributors All: National vs Global aHUS Research Efforts

The aHUS Alliance shares research within specific nations, and notes the value of a global focus on the collaborative nature of atypical HUS research and of aHUS advocacy. Creating improvements in disease management, determining clinical guidelines, and deepening of the aHUS knowledge base is important within each nation – in turn this benefits global collaboration as it further builds upon such efforts.

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Breaking Down Barriers in aHUS Clinical Trials

Break down in communication flows and fragmented outreach have built barriers for research and clinical trial enrollment regarding advancing new options for those with the rare disease atypical HUS (aHUS, or hemolytic uremic syndrome). The aHUS Alliance looks at current challenges, and potential pathways to explore and engage.

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RESEARCH THAT MATTERS TO aHUS PATIENTS IN KIDNEY WEEK 2018

Kidney Week 2018 – aHUS Alliance overview of presentations that matter to the atypical HUS community. Links to ASN presentations and abstracts on topics such as complement, kidney transplant, pregnancy, eculizumab, thrombotic microangiopathy, HELLP, aHUS global registry, and more.

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