It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies. There are several causes of those TMAs. Pre- eclampsia…
Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted the alliance having read the blog about pregnancy and aHUS…
Not surprisingly, as it is one of the hottest topics* in the aHUS community, there was a high number of questions about pregnancy in the Rare Disease Day video. About…
UPDATED April 2019: New Research View the video about aHUS & Pregnancy Dr Craig Gordon on the topic of Pregnancy & TMA: A challenging Dilemma, with preface by M…
When it comes to advocacy why say there is aHUS and there is also aHUSs? The rare disease aHUS is described as the thrombotic microangiopathy triggered by uncontrolled complement activity…
Imagine atypical haemolytic uraemic syndrome or aHUS on a well know quiz show, say Mastermind. How would it look?--- The Mastermind studio lights dim slightly as Emily Bartley settles into…
A frequent discussion on aHUS social media platforms is about "probabilities" and "percentages". The probabilities of someone inheriting an aHUS predisposing variant ( mutation) from their parents and the percentage…
A PDA or patient decision aid is becoming an important part of the increasing shared decision making by patients and doctors. How do patients prepare themselves for a discussion on…