It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies. There are several causes of those TMAs. Pre- eclampsia…
Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted the alliance having read the blog about pregnancy and aHUS…
Not surprisingly, as it is one of the hottest topics* in the aHUS community, there was a high number of questions about pregnancy in the Rare Disease Day video. About…
UPDATED April 2019: New Research View the video about aHUS & Pregnancy Dr Craig Gordon on the topic of Pregnancy & TMA: A challenging Dilemma, with preface by M…
The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might help to greater clarity and understanding to this topic.…
Hi I don't have the aHUS gene. Hi That is good, but there is no aHUS gene so you could not have it anyway. What do you mean there is…
Keeping track of medical advancements in the rare disease space is challenging, but for those interested in atypical HUS the aHUS Alliance Global Action team 'rounds up' new publications every…
Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause of their aHUS - they are idiopathic? They just…