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An exchange about aHUS genetic counselling

Hi I don't have the aHUS gene. Hi That is good, but there is no aHUS gene so you could not have it anyway. What do you mean there is…

What’s New in aHUS Research – Dec 2025 Edition

Keeping track of medical advancements in the rare disease space is challenging, but for those interested in atypical HUS the aHUS Alliance Global Action team 'rounds up' new publications every…

Idiopathic aHUS- so what ?

Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause of their aHUS - they are idiopathic? They just…

Atypical HUS Facts: 2025 -Sept- 2026

2025 – SEPT – 2026 Atypical HUS: Fact Sheet Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical knowledge can change rapidly, which can be problematic for…

What’s New in aHUS Research: Summer 2025

The aHUS Alliance Global Action team remains strong advocates for those affected by the rare disease atypical HUS, and proudly partners with people and groups dedicated to shedding light on…

India had its first aHUS patient conference- what next

India has had its first patient conference. A summary of what was covered has been posted on line and reposted below. Its clear and concise style makes it easy to…

Advocacy for aHUS and “aHUSs”

When it comes to advocacy why say there is aHUS and there is also aHUSs? The rare disease aHUS is described as the thrombotic microangiopathy triggered by uncontrolled complement activity…

Mastermind on aHUS

Imagine atypical haemolytic uraemic syndrome or aHUS on a well know quiz show, say Mastermind. How would it look?--- The Mastermind studio lights dim slightly as Emily Bartley settles into…