It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies. There are several causes of those TMAs. Pre- eclampsia…
Earlier this year ,when the alliance was responding to the Rare Disease Day video questions , aHUS Patient Megan contacted the alliance having read the blog about pregnancy and aHUS…
Not surprisingly, as it is one of the hottest topics* in the aHUS community, there was a high number of questions about pregnancy in the Rare Disease Day video. About…
UPDATED April 2019: New Research View the video about aHUS & Pregnancy Dr Craig Gordon on the topic of Pregnancy & TMA: A challenging Dilemma, with preface by M…
Atypical Hemolytic Uremic Syndrome – a Rare Disease Solid, independent information on this rare disease is genuinely hard to find, and the science behind it keeps shifting as new research…
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living with it. Like many they have corresponded and collaborated…
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a professor and very respected. When the role was introduced…
Once more the aHUS Alliance Global Action team presents a brief overview of new publications just added to our ‘Atypical HUS Virtual Library’. As an international group of aHUS patients…