Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been called worse, so OK, what do you want? I…
There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the wide variations in the disease’s name and classification. It’s…
Early in November in the USA thoughts not just turn to elections but also to Kidney Week. The American Society of Nephrologists Kidney Week is the biggest event in the…
You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured. You will be a patient with the "DISEASE FORMERLY…
We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some may wonder why a physician whose specialty area is…
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting me to attend a conference about Complement Renal Disease.…
When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by those with rare diseases permeate the thinking of those…
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new aHUS therapeutic treatments? As with most matters, COVID-19 priorities…