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aHUS at ASN Kidney Week 2022

Early in November in the USA thoughts not just turn to elections but also to Kidney Week. The American Society of Nephrologists Kidney Week is the biggest event in the…

You don’t have aHUS any more

You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured. You will be a patient with the "DISEASE FORMERLY…

Maternal Fetal Medicine: Collaborative Partnerships in TMA Care

We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some may wonder why a physician whose specialty area is…

Improving outcomes for “aHUS” patients, I was there.

As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting me to attend a conference about Complement Renal Disease.…

The ethics of aHUS treatment trials

When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by those with rare diseases permeate the thinking of those…

aHUS Drug Candidates – the 2022 Landscape

What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new aHUS therapeutic treatments? As with most matters, COVID-19 priorities…

Topics in aHUS Research – Sept 2022

Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in learning about a medical condition that affects us personally.…

Atypical HUS in Portugal

We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and views of patients in a specific nation. Thanks to…