Recently I wrote an article about a clinical study which is an Ravulizumab pregnancy registry in the USA. Then tried to imagine what a topic like that would look like…
Complement inhibition treatment discontinuation is a topic that Global Action has led on in the aHUS patient advocacy world for several years. More than anyone else our website has provided…
It’s been a busy 4th quarter to round out 2024 for our aHUS Alliance Global Action team, and we’d like to share a few highlights from recent publications which have…
Recently a novel article about complement inhibitor treatment discontinuation was published. Novel because of the research method used to produce its results. A qualitative study based on interviews with ten…
This is the 700 th blog article about aHUS on this website. When thinking about how to mark this milestone a gimicky idea came to mind to list 700 facts…
Without any further comment here is the model mentioned in the previous article ( which if you have not already seen can be read HERE ). Have a go at…
You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a complement inhibitor. It WORKED. You tolerated the drug. Your…
Atypical HUS & Travel: Planning a trip for work or pleasure? A look at minimizing risks while maximizing a smooth travel adventure.