Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial carton containing these medications. When it is unfolded it…
During December and January last, there has been a review of each of the 15 topics in the patients research agenda. Many of the topics were included in the first…
It’s 2024. A New Year.This year around the world about 4000 people will newly onset with the primary form of aHUS. About 1200 of them will be living in China…
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Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will find out about the events and the people we…
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY DISEASE OR ITS TREATMENT Amber, Amelie, Amy, Anne-Kathrin, Arthur,…
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To answer some of the questions in the aHUS Patients Research Agenda clinical trials will be needed. Take the issue of withdrawal from complement inhibitor treatment. Setting up a trial…