Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Article No. 295 9 November 2019 Genetics are important when it comes to aHUS. Yet genetics does not feature in the name of the disease not even the part of…
2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.
Along with the question about withdrawal from Complement inhibitor treatment , aHUS patients consider that research into the state of aHUS remission ,whether ever or never treated with eculizumab ,…
More from the reluctant advocate. The July meeting of NICE left us worried. The meeting had been held on 23rd July as planned. I attended with my fellow aHUSUK Trustee…
One mother’s personal story about her young son’s diagnosis with atypical HUS. Connected to the broader themes of what happens after a rare disease diagnosis as working parents strive to navigate, childcare, emotional stress, and family impacts.
The Dutch aHUS patients' conference is being held in Nimegen and the participants are gathering at the Fletcher Park Hotel Val Monte for the talks. The attendees are a mix…