Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…
Article No. 338 10 April 2020 Mental Health admist COVID-19 In challenging times, circumstances may find you feeling isolated or anxious, but likely many people additionally experience…
Article No. 333 18 March 2020 The reaction to aHUS Global Action’s two blogs about aHUS and COVID-19 has been truly remarkable. It demonstrated , superbly ,the interest by the…
Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Article No. 295 9 November 2019 Genetics are important when it comes to aHUS. Yet genetics does not feature in the name of the disease not even the part of…
2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.
Along with the question about withdrawal from Complement inhibitor treatment , aHUS patients consider that research into the state of aHUS remission ,whether ever or never treated with eculizumab ,…