aHUS Voice from India supports UN NGO for Rare Disease Action

The United Nations has created a Non Government Organisation  Committee for Rare Disease and held its inaugural meeting in November which was transmitted live throughout the world by webinar.
Kamal Shah of aHUS India, and a key contributor to the aHUS alliance’s activities, was invited  by EURORDIS to speak about aHUS in a short video.
The video is now available to see at the link here , and hear what Kamal’s comments to the UN’s NGO committee.

11 Nov 2016    NGO Committee for Rare Diseases (pdf) :   The Global Gathering for Rare Diseases:  Inaugurating the NGO Committee for Rare Diseases (CfRD) 

NGO Committee for Rare Diseases   Visit the organization’s website to learn more:   UN Resolution on Persons Living with a Rare Disease and their Families

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