The United Nations has created a Non Government Organisation Committee for Rare Disease and held its inaugural meeting in November which was transmitted live throughout the world by webinar.
Kamal Shah of aHUS India, and a key contributor to the aHUS alliance’s activities, was invited by EURORDIS to speak about aHUS in a short video.
The video is now available to see at the link here .
Click on the only button in the map of India which appears; and then on the image of Kamal that appears, to hear what Kamal had to say about aHUS and Global Rare Disease action .
