News & Blogs - Page 62 of 82 - aHUS Alliance Action

Don’t rain on our parade!

Post author:ahusalliance
Post published:September 27, 2018
Post category:Featured
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The story of The Reluctant Advocate continues 14 June 2012 London – AGNSS Meeting to Evaluate Eculizumab for aHUS. This…

aHUS who cares?

Post author:ahusalliance
Post published:September 26, 2018
Post category:Featured
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Another aHUS Awareness Day passes with an increase in participation by the aHUS community. At the time of writing the aHUS…

aHUS Awareness Day 2018 – The Video

Post author:ahusalliance
Post published:September 24, 2018
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Once again, with the help of aHUS Patients and their families, the aHUS alliance has produced a video to spread the…

Atypical HUS Fact Sheets – Sept 2018 Editions

Post author:ahusalliance
Post published:September 21, 2018
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Atypical HUS Fact Sheets (released Sept 2018) provide aHUS -specific research and info about the rare disease atypical Hemolytic Uremic Syndrome or aHUS. Available in 2 formats: an 'In Brief' print friendly pdf, and a full length version (17 page) with links to current atypical HUS research (with citations) and key topics of interest to physicians, aHUS patients, and their families.

ERKNET: aHUS and transplants

Post author:ahusalliance
Post published:September 18, 2018
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ERKNET’s website hosts a programme of webinars ( live talks over the internet) about Rare Renal Diseases . The talk today…

Atypical HUS & School

Post author:ahusalliance
Post published:September 11, 2018
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Atypical HUS and School: Information about teaching & learning. Learners of any age may be affected by chronic illness or a rare disease like aHUS. What schools and employers should know about people living with atypical hemolytic uremic syndrome (aHUS)