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Graphs & Insights – Results from the 2016 aHUS Global Poll

  • Post author:ahusalliance
  • Post published:July 20, 2016
  • Post category:Featured
  • Post comments:0 Comments

  The aHUS Alliance, an umbrella group of 15 nations with aHUS patient groups, launched a worldwide poll of aHUS patients and…

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Read more about the article Trials relevant for aHUS patients around the world

Trials relevant for aHUS patients around the world

  • Post author:ahusalliance
  • Post published:June 5, 2016
  • Post category:Featured
  • Post comments:0 Comments

One of the best ways to keep up to date with clinical trials relating to complement inhibitors and aHUS is to…

Continue ReadingTrials relevant for aHUS patients around the world
Read more about the article EURORDIS SEEKS COLLABORATION IN EUROPE ON PRICE OF DRUGS

EURORDIS SEEKS COLLABORATION IN EUROPE ON PRICE OF DRUGS

  • Post author:ahusalliance
  • Post published:June 3, 2016
  • Post category:Featured
  • Post comments:0 Comments

Earlier this week EURORDIS issued a press release calling on Europe's health payers and suppliers to agree europe-wide prices for orphan…

Continue ReadingEURORDIS SEEKS COLLABORATION IN EUROPE ON PRICE OF DRUGS

Welcome to the new aHUS alliance Website

  • Post author:ahusalliance
  • Post published:May 28, 2016
  • Post category:Featured
  • Post comments:0 Comments

WELCOME This is where the aHUS alliance will connect, inform and collaborate with the Global aHUS community for the benefit of all…

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aHUS Global Survey 2016 – the Questionnaire

  • Post author:ahusalliance
  • Post published:May 28, 2016
  • Post category:Featured
  • Post comments:0 Comments

Although the 2016 aHUS Survey is now closed  some of the results of the survey are now  being released  but the…

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Read more about the article Global Videos about aHUS

Global Videos about aHUS

  • Post author:ahusalliance
  • Post published:May 24, 2016
  • Post category:Uncategorized
  • Post comments:0 Comments

The aHUS alliance is made up of affiliated aHUS organisations from around the world, which are in constant contact, and collaboration,…

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Read more about the article Global aHUS Registry

Global aHUS Registry

  • Post author:ahusalliance
  • Post published:May 24, 2016
  • Post category:Featured
  • Post comments:0 Comments

In the 2016 aHUS Global Survey , aHUS patients and families gave their views on some aHUS Research and Registry issues.…

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aHUS Therapeutic Drugs

  • Post author:ahusalliance
  • Post published:May 24, 2016
  • Post category:Uncategorized
  • Post comments:0 Comments

NEW Information & Updates Available Here's the Latest:  Atypical HUS Drug Pipeline – 2017 Update from the aHUS Alliance    …

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Social Media and aHUS

  • Post author:ahusalliance
  • Post published:May 24, 2016
  • Post category:Uncategorized
  • Post comments:0 Comments

No one can describe the aHUS journey better than atypical HUS patients and their caregivers, and who better to globally frame…

Continue ReadingSocial Media and aHUS
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