Atypical HUS – Rare Disease Day 2018
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…
What happens in British Columbia does not stay in British Columbia
The recent incident in British Columbia about access to eculizumab, which was referred to in a recent blog ( click here)…
The aHUS Registry Explained (Part 1)
From its beginning the aHUS alliance’s website has featured articles about the aHUS Registry and the work it does (click here…
An Interim aHUS Patients Research Agenda
It is a year since an Orphanet Journal of Rare Disease article was published about a patients aHUS research agenda and…
100 days to Rare Disease Day 2018
aHUS is rarer than rare In patient advocacy for rare diseases like aHUS there seems to be a background cycle to…
All for one , one for all
aHUS is a savage and cruel illness that kills and maims people. This is something that those who have experienced it,…
ASN studies address aHUS Research Agenda
Once again, the American Society of Nephrology’s (ASN) Kidney Week adds considerably to the knowledge of kidney disease in all its…
Conference News & Info – Nov & Dec 2017
What news might be of interest to aHUS stakeholders these last 2 months of 2017? Advancements in research and…
aHUS Trials Watch 3
In the aHUS Trials Watch 2 blog ( see here) news about a trial of a new complement inhibitor Cemdisiran using…
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