aHUS Rare Disease Day Video 2
Like the "Rocky" films, the alliance Rare Disease Day video has a follow up version as more people from more countries…
Like the "Rocky" films, the alliance Rare Disease Day video has a follow up version as more people from more countries…
For many thousands of aHUS patients around the world just getting access to eculizumab is the most pressing issue; but, increasingly,…
Other questions featured in the Rare Disease Day video about the aHUS treatment eculizumab, relate to side effects from infusions of…
After the pause in answering the Rare Disease Day video questions to consolidate them into the aHUS Patients Research Agenda; and…
While beginning to give responses to the questions featuring in the Rare Disease Day Video, the alliance has also been collating…
There are three questions in the Rare Diseases Day video which ask about allergy and immunity to eculizumab. These may be…
A couple of questions in the Rare Diseases Day video are about something that aHUS folk often talk about whenever they…
Questions relating to alternatives to eculizumab for aHUS ,and where those developments were up to, featured within many questions about eculizumab…
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…