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Author: ahusalliance

This author has written 437 articles
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Read more about the article aHUS patients on Ravulizumab- we need your help.

aHUS patients on Ravulizumab- we need your help.

  • Post author:ahusalliance
  • Post published:August 3, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…

Continue ReadingaHUS patients on Ravulizumab- we need your help.
Read more about the article Seeking aHUS genetic knowledge

Seeking aHUS genetic knowledge

  • Post author:ahusalliance
  • Post published:August 2, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…

Continue ReadingSeeking aHUS genetic knowledge
Read more about the article ERKNet 2020  Update

ERKNet 2020 Update

  • Post author:ahusalliance
  • Post published:July 28, 2020
  • Post category:Featured
  • Post comments:0 Comments

aHUS Global Action last reported on the ERKNet Registry in January this year ( see article here).At that time the TMA…

Continue ReadingERKNet 2020 Update
Read more about the article USA aHUS Patients-2000 or more and rising?
USA GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT

USA aHUS Patients-2000 or more and rising?

  • Post author:ahusalliance
  • Post published:July 27, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No.  362 27 July 2020 Ask Google " how many aHUS patients are there in the USA?" and you will…

Continue ReadingUSA aHUS Patients-2000 or more and rising?
Read more about the article 2020 aHUS Awareness Day

2020 aHUS Awareness Day

  • Post author:ahusalliance
  • Post published:July 24, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 361 24 July 2020   The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September…

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Read more about the article aHUS diagnosis: time is of the essence

aHUS diagnosis: time is of the essence

  • Post author:ahusalliance
  • Post published:July 22, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No 360 22 July 2020 Whilst aHUS patients increasingly wonder whether It is possible to withdraw from eculizumab/Ravulizumab treatment,  many…

Continue ReadingaHUS diagnosis: time is of the essence
Read more about the article Keeping aHUS connected

Keeping aHUS connected

  • Post author:ahusalliance
  • Post published:July 20, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No: 357 20 July 2020 aHUS alliance Global Action is launching a newsletter. ( See link below). Why? From its…

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Read more about the article aHUS:Time is a great healer

aHUS:Time is a great healer

  • Post author:ahusalliance
  • Post published:July 17, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No.356 17 July 2020 Two recent website articles delved into the data provided in an article by the Alexion aHUS…

Continue ReadingaHUS:Time is a great healer
Read more about the article aHUS health, well-being and work

aHUS health, well-being and work

  • Post author:ahusalliance
  • Post published:July 13, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…

Continue ReadingaHUS health, well-being and work
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