aHUS patients on Ravulizumab- we need your help.
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Seeking aHUS genetic knowledge
Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…
ERKNet 2020 Update
aHUS Global Action last reported on the ERKNet Registry in January this year ( see article here).At that time the TMA…
USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
USA aHUS Patients-2000 or more and rising?
Article No. 362 27 July 2020 Ask Google " how many aHUS patients are there in the USA?" and you will…
2020 aHUS Awareness Day
Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September…
aHUS diagnosis: time is of the essence
Article No 360 22 July 2020 Whilst aHUS patients increasingly wonder whether It is possible to withdraw from eculizumab/Ravulizumab treatment, many…
Keeping aHUS connected
Article No: 357 20 July 2020 aHUS alliance Global Action is launching a newsletter. ( See link below). Why? From its…
aHUS:Time is a great healer
Article No.356 17 July 2020 Two recent website articles delved into the data provided in an article by the Alexion aHUS…
aHUS health, well-being and work
Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…
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