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Author: ahusalliance

This author has written 437 articles
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Read more about the article aHUS is its end really nigh? (Part 1)

aHUS is its end really nigh? (Part 1)

  • Post author:ahusalliance
  • Post published:December 1, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 299 1 December 2019 Currently some challenge is taking place on the terms used to describe diseases in which…

Continue ReadingaHUS is its end really nigh? (Part 1)
Read more about the article aHUS Patient Centricity

aHUS Patient Centricity

  • Post author:ahusalliance
  • Post published:November 18, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 298 18 November 2019 A change is coming in the relationship between patients/ patient organisations and Pharma. This  change…

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Read more about the article Where and what next?

Where and what next?

  • Post author:ahusalliance
  • Post published:November 15, 2019
  • Post category:Uncategorized
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Article No. 297 15 November 2019     There is a saying in “management theory” that in the development of a…

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Read more about the article What do you call it?

What do you call it?

  • Post author:ahusalliance
  • Post published:November 13, 2019
  • Post category:Featured
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Article No. 296 13 November 2019   A while back, a blog was published on this website titled “A rose  by…

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Read more about the article Difference In differences

Difference In differences

  • Post author:ahusalliance
  • Post published:November 9, 2019
  • Post category:Uncategorized
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Article No. 295 9 November 2019 Genetics are important when it comes to aHUS. Yet genetics does not feature in the…

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Read more about the article ASN,  aHUS and the sisters from Missouri

ASN, aHUS and the sisters from Missouri

  • Post author:ahusalliance
  • Post published:November 8, 2019
  • Post category:Featured
  • Post comments:0 Comments

Kidney Week 2019 is currently in progress. The American Society of Nephrology’s  annual event is being held in Washington DC and…

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Read more about the article aHUS genetic counselling-evidence based

aHUS genetic counselling-evidence based

  • Post author:ahusalliance
  • Post published:November 3, 2019
  • Post category:Uncategorized
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Some new aHUS Research* was presented at the recent meeting of the International Pediatric Nephrology Association in Venice. A talk by…

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Read more about the article Complement database leader interview

Complement database leader interview

  • Post author:ahusalliance
  • Post published:November 1, 2019
  • Post category:Uncategorized
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Professor Stephen Perkins began his research career having studied Chemistry and Molecular Biophysics at Oxford University as well as undertaking Research…

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Read more about the article A well  of aHUS mutations

A well of aHUS mutations

  • Post author:ahusalliance
  • Post published:November 1, 2019
  • Post category:Uncategorized
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aHUS patients  raised the question “ are the predisposing genetic factors of aHUS fully catalogued?” as a topic of research which…

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