aHUS and COVID 19 Vaccine Update Update
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a…
aHUS uncertainty is a certainty
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…
Update: aHUS Diagnosis Process Study
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
aHUS Relapse: Expect the Unexpected
Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.
Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
Atypical HUS Relapse – A Family View
Article No. 418 9 February 2021 Our family has been through life-threatening episodes of atypical HUS before, so you’d think that…
Evidence helps aHUS eculizumab access
Article No 416 2 February 2021 Vergoeding eculizumab verlengd tot eind 2025 In March 2016 the Appraisal Committee (ACP) of the…
aHUS Trials Watch 11 ( Crovalimab)
Article No. 415 1 February 2021 In a recent article (article413) about research into why specifically monoclonal antibodies (mAb) work when…
Follow up on aHUS/COVID19 JAbs Follow Up
Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s…