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Read more about the article Spotlight on aHUS Research – July 2021

Spotlight on aHUS Research – July 2021

  • Post author:Linda Burke
  • Post published:July 14, 2021
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Research - What's New? The aHUS Alliance Global Action team has created a virtual 'library' of publications that are aHUS-specific and are categorized by topics such as diagnosis, treatment, genetics, thrombotic microangiopathy (TMA), complement, transplant, pregnancy, and more.

Continue ReadingSpotlight on aHUS Research – July 2021
Read more about the article aHUS Trials Watch 12a (crovalimab)

aHUS Trials Watch 12a (crovalimab)

  • Post author:ahusalliance
  • Post published:July 13, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 445 13 July 2021 Hoffmann Roche has announced its pediatric trial of crovalimab for aHUS. It is featured on…

Continue ReadingaHUS Trials Watch 12a (crovalimab)
Read more about the article COVID 19 triggers aHUS

COVID 19 triggers aHUS

  • Post author:ahusalliance
  • Post published:July 12, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 444 12 July 2021 Not unexpectedly, as aHUS Global Action had postulated it in March last year, a COVID…

Continue ReadingCOVID 19 triggers aHUS
Read more about the article 24 Sept 2021 – aHUS Awareness Day

24 Sept 2021 – aHUS Awareness Day

  • Post author:Linda Burke
  • Post published:July 9, 2021
  • Post category:Featured
  • Post comments:0 Comments

The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year's aHUS Day is 'United in Advocacy'. Details the 2021 global campaign to raising awareness of atypical HUS.

Continue Reading24 Sept 2021 – aHUS Awareness Day
Read more about the article Evaluating ravulizumab for aHUS treatment

Evaluating ravulizumab for aHUS treatment

  • Post author:ahusalliance
  • Post published:June 23, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 442 23 June 2021 Today NICE ( The National Institute for Health and Care Excellence) concluded its evaluation of…

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Read more about the article Decision Process: Discontinuing aHUS Treatment 

Decision Process: Discontinuing aHUS Treatment 

  • Post author:Linda Burke
  • Post published:June 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No 441 18 June 2021      What topics and questions are likely to frame conversations about treating patients who…

Continue ReadingDecision Process: Discontinuing aHUS Treatment 
Read more about the article Kidney Disease & Dental Health

Kidney Disease & Dental Health

  • Post author:Linda Burke
  • Post published:May 24, 2021
  • Post category:Featured
  • Post comments:0 Comments

Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.

Continue ReadingKidney Disease & Dental Health
Read more about the article Eculizumab aHUS treatment: PESaM
FRANCE SHUA - SYNDROME HÉMOLYTIQUE ET URÉMIQUE ATYPIQUE FRANCE

Eculizumab aHUS treatment: PESaM

  • Post author:ahusalliance
  • Post published:May 22, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 436 21 May 2021   It is amazing sometimes what you can find on the internet when searching for…

Continue ReadingEculizumab aHUS treatment: PESaM
Read more about the article England recommends Ravulizumab for aHUS
UNITED ARAB EMIRATES

England recommends Ravulizumab for aHUS

  • Post author:ahusalliance
  • Post published:May 20, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 435 20 May 2021 There is a  saying that  "you can wait ages for a London bus but then…

Continue ReadingEngland recommends Ravulizumab for aHUS
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