Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.
Article No. 436 21 May 2021 It is amazing sometimes what you can find on the internet when searching for…
Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then…
Article No. 434 10 May 2021 The Scottish Medicines Consortium (SMC) has approved the use of Ravulizumab for treating aHUS in…
Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new…
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…
Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…