Experiencing aHUS – Viewpoints & Variations
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…
aHUS uncertainty is a certainty
Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…
aHUS Relapse: The Ties that Bind
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
Update: aHUS Diagnosis Process Study
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
aHUS Relapse: Expect the Unexpected
Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.
Being An aHUS Trialist
Article No. 419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…
Atypical HUS Relapse – A Family View
Article No. 418 9 February 2021 Our family has been through life-threatening episodes of atypical HUS before, so you’d think that…
aHUS in pregnancy and after
Article No 410 13 January 2021 The link between pregnancy and aHUS has been known for several decades. A chapter was…
aHUS Better- it depends and takes time
Article No. 408 7 January 2021 An aHUS onset is an anxious and exhausting event. It may have bubbled under unnoticed…
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