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Read more about the article Experiencing aHUS – Viewpoints & Variations 

Experiencing aHUS – Viewpoints & Variations 

  • Post author:Linda Burke
  • Post published:March 30, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…

Continue ReadingExperiencing aHUS – Viewpoints & Variations 
Read more about the article aHUS uncertainty is a certainty

aHUS uncertainty is a certainty

  • Post author:ahusalliance
  • Post published:March 16, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…

Continue ReadingaHUS uncertainty is a certainty
Read more about the article aHUS Relapse: The Ties that Bind

aHUS Relapse: The Ties that Bind

  • Post author:Linda Burke
  • Post published:March 4, 2021
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.

Continue ReadingaHUS Relapse: The Ties that Bind
Read more about the article Update: aHUS Diagnosis Process Study

Update: aHUS Diagnosis Process Study

  • Post author:ahusalliance
  • Post published:March 1, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…

Continue ReadingUpdate: aHUS Diagnosis Process Study
Read more about the article aHUS Relapse: Expect the Unexpected

aHUS Relapse: Expect the Unexpected

  • Post author:ahusalliance
  • Post published:February 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.

Continue ReadingaHUS Relapse: Expect the Unexpected
Read more about the article Being An aHUS Trialist

Being An aHUS Trialist

  • Post author:ahusalliance
  • Post published:February 16, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No.  419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…

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Read more about the article Atypical HUS Relapse – A Family View

Atypical HUS Relapse – A Family View

  • Post author:ahusalliance
  • Post published:February 9, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 418 9 February 2021 Our family has been through life-threatening episodes of atypical HUS before, so you’d think that…

Continue ReadingAtypical HUS Relapse – A Family View
Read more about the article aHUS in pregnancy and after

aHUS in pregnancy and after

  • Post author:ahusalliance
  • Post published:January 13, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No 410 13 January 2021 The link between pregnancy and aHUS has been known for several decades. A chapter was…

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Read more about the article aHUS Better- it depends and takes time

aHUS Better- it depends and takes time

  • Post author:ahusalliance
  • Post published:January 7, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No.  408 7 January 2021 An aHUS onset is an anxious and exhausting event. It may have bubbled under unnoticed…

Continue ReadingaHUS Better- it depends and takes time
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