aHUS in 2020
Article No. 406 22 December 2020 As the year is drawing to a close and the holidays are fast approaching, it…
Eculizumab withdrawal- safe and reasonable?
Article No. 405 20 December 2020 In the past month there has been a spate of articles on the topic of…
aHUS Research Update: Dec 2020
What's new in atypical HUS Research & Publications? aHUS Alliance Global Action - Keeping you updated with new aHUS research as of December 2020.
AstraZenaca to buy Alexion
Article No. 403 12 December 2020 News has emerged, in the past two hours, that Alexion is to be bought for…
TMA-Semantics are important
Article No. 402 12 December 2020 Just over a year ago aHUS Global Action featured a series of articles "aHUS is…
A day in an aHUS life
Article No. 401 11 December 2020 When it comes to those who have aHUS in their lives , everyone has some…
Withdrawal evidence patients need to know
Article No. 400 5 December 2020 Whilst on the topic of safe withdrawal from eculizumab treatment ( see previous articles 398…
Dip into ASH 2020
Article No. 397 28 November 2020 The second major conference at this time of year with research results which matter…
Atypical HUS: Not Like the Others
Patient involvement needs to be integrated across all areas of research and at early stages of planning clinical trials. When patient engagement is in the atypical HUS arena, what considerations make outreach a bit different for advocacy regarding this ultra rare disease?
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