A tale of two aHUS diagnoses
Article No 390 1 November 2020 All aHUS patients at some point have been told they have got aHUS. It is…
Again, just how many aHUS patients are there?
Article No. 369 12 August 2020 Recently when preparing an article about USA aHUS patient numbers ( see Article 362 )…
aHUS Day 2020: Global Video Project
Article No. 367 8 August 2020 aHUS Awareness Day 2020 is less than 2 months away! The world will join together…
aHUS patients on Ravulizumab- we need your help.
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Seeking aHUS genetic knowledge
Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…
ERKNet 2020 Update
aHUS Global Action last reported on the ERKNet Registry in January this year ( see article here).At that time the TMA…
USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
USA aHUS Patients-2000 or more and rising?
Article No. 362 27 July 2020 Ask Google " how many aHUS patients are there in the USA?" and you will…
Keeping aHUS connected
Article No: 357 20 July 2020 aHUS alliance Global Action is launching a newsletter. ( See link below). Why? From its…
aHUS health, well-being and work
Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…
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