aHUS patients on Ravulizumab- we need your help.
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Seeking aHUS genetic knowledge
Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…
ERKNet 2020 Update
aHUS Global Action last reported on the ERKNet Registry in January this year ( see article here).At that time the TMA…
USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
USA aHUS Patients-2000 or more and rising?
Article No. 362 27 July 2020 Ask Google " how many aHUS patients are there in the USA?" and you will…
Keeping aHUS connected
Article No: 357 20 July 2020 aHUS alliance Global Action is launching a newsletter. ( See link below). Why? From its…
aHUS health, well-being and work
Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…
aHUS Patient Fatigue
Article No. 354 4 July 2020 Earlier this year aHUS Global Action published a major four part report (see HERE)…
Global aHUS advocacy
Article No 353 27 June 2020 Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS…
What about aHUS?
Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a…
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