As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting - what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or in related components in your blood…
Article No. 305 18 December 2019 Before 2019 comes to a close the opportunity is taken to acknowledge the work…
Article No. 296 13 November 2019 A while back, a blog was published on this website titled “A rose by…
Kidney Week 2019 is currently in progress. The American Society of Nephrology’s annual event is being held in Washington DC and…
Today is significant for everyone with aHUS. Today the US Food & Drugs Administration ( FDA ) announced its decision on…
Out of more than 7000 rare diseases, only an estimated 5% have an approved treatment or therapy (Rare Disease Day, FAQs).…
It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies.…