Your donation support means a lot.
Article No 371 24 August 2020 Click on image above to go to our PayPal Giving page to make a…
Like an Agatha Christie Story!
Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…
It’s not about My Rare Disease
Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.
aHUS i Norge (aHUS in Norway )
Article No 366 4 August 2020 An aHUS ROW (Rest of the World) update : Spotlight on aHUS Norway …
2020 aHUS Awareness Day
Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September…
aHUS diagnosis: time is of the essence
Article No 360 22 July 2020 Whilst aHUS patients increasingly wonder whether It is possible to withdraw from eculizumab/Ravulizumab treatment, many…
aHUS:Time is a great healer
Article No.356 17 July 2020 Two recent website articles delved into the data provided in an article by the Alexion aHUS…
2020 Atypical Drug Discovery Review, released by the aHUS Alliance
2020 overview of atypical HUS therapeutic drug development, by the aHUS Alliance
Voicing a Global aHUS Vision
Прекрасным будет тот день, когда наше осознание серьёзности заболевания аГУС/кТМА* поможет добиться того, что пациенты во всем мире смогут позволить себе…
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