The aHUS diagnosis challenge
Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For…
Attaining aHUS wellness and well being
Article No 373 2 September 2020 The theme for aHUS awareness day this year is wellness and well-being. Two words which…
Think aHUS 60k this coming awareness day
Article No. 372 1 September 2020 One thing is certain, no one knows how many aHUS patients there are in the…
Your donation support means a lot.
Article No 371 24 August 2020 Click on image above to go to our PayPal Giving page to make a…
Like an Agatha Christie Story!
Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…
It’s not about My Rare Disease
Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.
aHUS i Norge (aHUS in Norway )
Article No 366 4 August 2020 An aHUS ROW (Rest of the World) update : Spotlight on aHUS Norway …
2020 aHUS Awareness Day
Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September…
aHUS diagnosis: time is of the essence
Article No 360 22 July 2020 Whilst aHUS patients increasingly wonder whether It is possible to withdraw from eculizumab/Ravulizumab treatment, many…
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